Registries & regional data

A list of “Covid-19 & pregnancy” registries, as well as of some regional groups who have reported data.

Both are likely to be more representative than hospital-based series (click here), or news reports (click here), although they will overlap. Updated 17 December 2020.

National Registries

1 UKOSS – The United Kingdom Obstetric Surveillance System (UKOSS) Pandemic COVID-19 in pregnancy registry (click here, & registered here) is collecting cases via each NHS Trust’s local UKOSS reporter. It includes early pregnancy, including miscarriage & ectopic pregnancy.

2. COVI-PREG – (click here) Based in Centre Hospitalier Universitaire Vaudois (CHUV), Lausanne University Hospital, Switzerland.

3. PRIORITY – (click here), the Pregnancy Coronavirus Outcomes Registry (PRIORITY), coordinated through the University of California is collecting both confirmed and suspected cases. Doctors may refer patients. Patients may refer themselves. By 16 April, 300 participants had been enrolled.

4. ROI COVID-19 – The Republic of Ireland Covid-19 registry (click here).

5. NethOSS – the Netherlands Covid-19 registry (click here). To register cases email info@nethoss-perined.nl. By 12 April 2020, 107 reports had been received, 91 with brief, and 50 with extensive additional information.

6. CHOPAN – The Australian Registry. CHOPAN (Coronavirus Health Outcomes in Pregnancy & Newborns)  – click here, or here to register.

7. National Health Commission of China – Not strictly a registry, but on 17th April a group using this source reported all cases of Covid-19 in pregnancy seen in any hospital in Wuhan between December 8, 2019 & March 20, 2020 (click here). These data supersede all previous reports from Wuhan hospitals for women admitted before March 20.

8. ItOSS -The Italian registry – Click here.

9. PregCOVID, The National Registry of Pregnant Women with COVID-19 in India (click here). Contact: Dr Rahul Gajbhiye. Dept Clinical Research ICMR-National Institute for Research in Reproductive Health, J M Street, Parel, Mumbai email: gajbhiyer@nirrh.res.in

10. Obs Covid Spain – A Spanish Covid-19 in pregnancy registry based around the 77 hospitals in the previously exisiting “Emergency Obstetrics Spain Group”. (click here for the protocol).

11. RECOGEST – The National Registry for the study of COVID-19 in pregnancy in Colombia (click here).

12. CanCovid-preg – Canadian registry of Covid-19 in pregnancy (click here).

Other registries & surveys

1. PANCOVID – Pregnancy And Neonatal outcomes for women with COVID-19 (click here). Run by Imperial College London and University of Wales.

2. US CDC – United States, Centres for Disease Control (CDC) includes pregnancy in its Covid-19 report forms. This report here, up to March 28, included 143 pregnant women.

3. ICNARC – The UK Intensive Care National Audit & Research Centre (ICNARC) includes some pregnant women. For their 4 April 2020 report, which included eight pregnant or recently pregnant women, click here.   Data updated 17 April.

4. ObsCovid – A UK registry, supported by RCOG, RCM, OAA & RCoA, for maternity healthcare workers to record and follow-up encounters with mothers with suspected or confirmed COVID-19 (click here).

5. Santé Publique France – Reports Covid-19 admissions to intensive care in France (click here, report in French). By 16 April, 13 pregnant women had been admitted to intensive care. None had died.

6. The Traditional, Complementary & Integrative Health & Medicine COVID-19 Support Registry (click here) includes a data field on pregnancy.

7. COVID-19 ICU registry – Click here. A Multicenter International Data Repository of patients admitted to ICU. Hosted by Massachussets General Hospital.  It will include pregnant women.

8. INTERCOVID – Click here. A prospective case control study using the centres who participated in the INTERGROWTH-21st Project.

9. IRCEP – International Registry of Coronavirus Exposure in Pregnancy (IRCEP) (click here). Not yet opened. Based in the TH Chan School of Public health, Harvard University.

10. COV-PREG-COAG – run by the International Society of Thombosis & Haemostasis. The International Registry on Pregnancy and COVID-19 Associated Coagulopathy and Thrombosis (COV-PREG-COAG) can be accessed here.

11. PeriCovid – Understanding COVID-19 infection in pregnant women and their babies. Run by St George’s, London. Protocol here.

12. COVID-19 New Mum Study – (click here).

13. Mother to Baby Covid-19 in pregnancy study.  (click here). Open to women in US or Canada. Also recruiting breastfeeding women with  COVID-19 .

14. COVID Mothers Study – (click here). Mothers who had Covid-19 in pregnancy or whose babies had it under the age of one year are eligible to participate in this anonymous registry.

15. OTIS MotherToBaby (click here).

16. Society of Neonatal & Perinatal Medicine (SONPM) National Registry for Surveillance and Epidemiology of Perinatal COVID-19 Infection (click here).

17. Covid-19 Pregnancy and Postpartum Experiences (COPE) Study. (click here)

18. Pregnant during COVID-19 – Survey from Woman’s Hospital (Baton Rouge, Louisiana)(click here).

19. SECURE-SCD – COVID-19 in patients living with sickle cell disease (click here). Includes, indeed mostly, non pregnant cases.

20. iPOP Study – International Perinatal Outcomes in the Pandemic study (click here). Measuring the indirect effects of lockdown.

Regional Reports

1. The COVID-19 Obstetrics Task Force, Lombardy, reported 42 cases in pregnancy from six regional hubs (including Milan, Brescia, Bergamo, Monza, & Pavia) up to March 20th (click here).

2. BORN Ontario – Better Outcomes Registry & Network is co-ordinating Covid-19 data collection in pregnancy in Ontario (click here). Their first Covid-19 data was published on 27 April 2021 (click here). Accessed 5 May 2021

Jim Thornton